another 24 hours and it will be over and i can breathe
Here goes nothing:
Until I met Adam, my now fiancé, I had never heard of Cystic Fibrosis, the illness he was diagnosed with at birth. Six years later, it is perhaps the most impactful aspect of my day-to-day life. Cystic Fibrosis primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus. People with CF develop an abnormal amount of excessively thick and sticky mucus within the lungs, airways and the digestive system. The mucus causes impairment of the digestive functions of the pancreas and traps bacteria in the lungs resulting in recurrent infections which lead to irreversible damage. Lung failure is the major cause of death for someone with CF. There is currently no cure. From birth, a person with CF undergoes constant medical treatments and physiotherapy.
Adam goes through thousands of dollars of medication a month. He is currently on three different medications for his stomach alone (the second to counter the side effects of the first, and the third to counter the side effects of the second). He is almost always unwell. He is in and out of hospital far too often. His lung function is dropping. Consistently.
Life expectancy is 37.
Adam and I are getting married in November, and I would like to spend as many anniversaries with him as possible. On October 26th, I’m going to be running 8 kilometres in the Great Strides 2014 event to raise money for Cystic Fibrosis Victoria. The cost of living for people with CF can be crippling, and CFV have helped Adam and I time and time again. They are a fantastic not-for-profit organisation whose main goal is to improve the quality of life for families and adults living with Cystic Fibrosis.
Running 8 kilometres is going to be a massive feat for me, but it is not half so hard as the challenges many CF sufferers face on a daily basis. If you are able, I would appreciate absolutely anything you can donate. I know that I am asking a lot, and I understand that not everyone is in a position to do so—which is absolutely fine!—but this cause is too close to my heart for me not to explore every avenue. I need to do everything I can to help.
I would really appreciate it if you could reblog this post—if not for me, then for this adorable photo of my fiancé on his second birthday.
Donations can be made by clicking on this link [x]
Thank you so much for reading.
I’m so sorry I’ve been such a blah blogger lately, real life is just heavy rn but I’m still here just not, thank you for not unfollowing me <3
you ever get those moments where everything around you just darkens? here are some tips on how to deal with those days.
- get out of bed. i know it’s hard sometimes but you can do it!!! sit up, get your blanket off, stand up. there you go!
- you need a little light in your life! and i mean actual light. pull up the blinds or the curtains aside, and if it’s dark outside turn on a lamp or two or all of them.
- drink something! get a glass of water or a whole bottle. drink. remember that your body needs water! you can also get iced tea, orange juice, or whatever else you want… maybe even a hot chocolate.
- eat something! whether it’s a banana or a sandwich, it doesn’t matter. give your body something to work with.
- take a shower! rinse off, shampoo your hair, shave, stay there unmovingly for minutes on end — however you want. brush your teeth.
- get clean, comfortable clothes!
- have a pet? track it down. cuddle.
- open your window wide (if you have one) and/or change your bedsheets. is there a better feeling than fresh, clean sheets? i dare say no
- distract yourself! you could marathon your favourite show (make it as funny and uplifting as it gets! i recommend brooklyn 99), watch a movie, read a book, think of your otp kissing, draw, clean the house, knit, watch cat videos, write, … the options are endless. (x) (x) (x) (x) (x) (x) just remember: don’t strain your eyes too much.
- talk to friends! and i mean the real ones. take a minute and think about who really cares about you, and then contact them. i know it’s cliché to say this, but 84% of the time it really helps. you can decide whether to talk about the issue at hand or something else entirely.
- if you’re feeling up for it, go outside. get fresh air. feel the sun or wind on your skin. (it can be the balcony or your garden if you don’t want to go too far. that’s totally okay.)
- make a to-do list! it doesn’t have to be long or particularly impressive, just make a plan for the day. write down things you want or need to do, like chores around the house, a shopping list, a wish list on amazon, whatever. make yourself something to look forward to.
- feeling better? plan ahead! you might experience this again, so make something to remind you what to do the next time. write a letter to yourself or make a list. write down what makes you happy. write down what helped you feel better. future!you might not remember.
“we are not abandoned cars stalled out and sitting empty on some highway
and if in some way we are
we only got out to walk and get gas”
— shane koyczan
where the tall girl’s
the stars fall turned 2 today!
I didn’t realize I’d had this blog for two years, I’m gonna cry. Thank you all for following me, you’re wonderful <3333